Research Study · Ankylosing Spondylitis

We're running a paid research study to help scientists better understand and treat ankylosing spondylitis.

Apply to see if you're eligible.

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How to apply.

01. Complete a pre-screen questionnaire.

02. Consent to share health records and participate in research.

03. We review records and invite eligible members to join.

Berkeley, CAresearch lab
PhD foundersUC Berkeley
IRB-approvedethics board oversight
Privacy-firstdata handling

What members receive.

Members enrolled in a research study receive the following benefits:

Educational health information and insights Provided by our care partner
Fair cash compensation For providing biospecimens for scientific analysis, e.g. blood testing
Updates on research progress Hear how the study is advancing autoimmune research

Data equity pledge

We are exploring future models that may allow participants to share in value generated from research using their data. AI lets us model biology, but it only works because of the data that our members contribute.

onyx HOME COLLECTION KIT Ankylosing Spondylitis Study CONTENTS Collection tube · Instructions Prepaid return label SAMPLE INSTRUCTIONS 1 2 3 PREPAID PREPAID RETURN NO POSTAGE NECESSARY ship it back → we do the rest

Collection tube, instructions, prepaid return label. Ships to your door. No clinic visit required.

What we ask of members.

Onyx is a research collective advancing scientific understanding of autoimmune diseases. Members contribute by:

Sharing health data and medical records
Providing blood samples for analysis
Participating in surveys and interviews
Offering feedback on research findings

All contributions are voluntary and members are fairly compensated for their time and effort.

Requirements.

Who can join

Adults 18 years or older
Diagnosis of ankylosing spondylitis by a rheumatologist
Additional eligibility criteria reviewed during screening

Good to know

Participation is completely voluntary
You can withdraw at any time
Research tests are not intended for medical diagnosis or treatment

Additional requirements may apply.

Apply for the study.

If that's you, consider applying. It takes a few minutes and there's no commitment until you decide.

apply

You can stop at any time.

Questions? research@onyx.bio

Common questions.

Members enrolled in a study receive cash compensation for providing biospecimens for scientific analysis, such as blood testing, as well as for participating in research interviews.

Samples are processed in our Berkeley lab for advanced laboratory testing and analysis. They are not sold to third parties. Member data is governed by strict privacy protocols.

No. We ship a collection kit to your home with a prepaid return label. Depending on protocol, a mobile phlebotomist may visit you at home, or we provide self-collection options.

We're developing a program so that members whose data contributes to research outcomes can share in the revenue generated. More details to come.

Onyx runs dedicated studies for rheumatoid arthritis, ankylosing spondylitis, systemic lupus erythematosus, and psoriasis and psoriatic arthritis, plus a broader autoimmune study that includes conditions such as systemic sclerosis.

Onyx is a research collective based in Berkeley, California. Our founders hold PhDs from UC Berkeley with backgrounds in computational biology and AI. The study is IRB-approved, meaning an independent ethics board oversees how the research is conducted and how participant data is handled.

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